Community support

SMA Europe

SMA Europe is a global network of patient advocacy organizations dedicated to supporting people living with SMA across Europe and the rest of the world. SMA Europe works to raise awareness, share educational resources, and amplify the voices of people and families affected by SMA.

Visit the SMA Europe site

What they do:

Research

Setting priorities, promoting, funding
and generating patient-relevant
research.

Advocacy

Using evidence-based advocacy, they
represent the voice of patients in
decisions that affect them.

Awareness

They campaign to raise awareness of SMA and promote the interests of our community.

Global outreach

Through its member organizations, SMA Europe connects individuals and families to local patient advocacy groups in different countries. 

Resources from SMA Europe

SMA Europe brings together educational resources developed with and for the SMA community. Their resources are designed to support you and those who care for you, offering practical, easy to understand information from a European and International perspective.

Care Standards for SMA

The Care Standards for SMA outline a multidisciplinary approach to care, helping individuals and caregivers understand the different types of support that may be involved across daily life. This includes areas such as rehabilitation, nutrition, respiratory care, and overall everyday management, as well as the roles of different healthcare professionals.