Navigating your SMA journey
Explaining SMA to others and advocating for yourself can be tough.This page brings together resources designed to support different parts of your SMA journey,
SMAshing My Limits: Making the move to adulthood
Stepping into adulthood can come with exciting milestones, and new challenges. This guide shares practical tips to help you navigate key transitions – such as education, work, healthcare, and growing independence – with confidence and support.
Let’s talk SMA: A how-to conversation guide
Talking about SMA isn’t always easy. This resource offers conversation starters and practical examples to help you explain your condition, advocate for your needs, and feel more confident in everyday conversations with friends, family, teachers, or colleagues.
Let’s reflect on your SMA: How are you SMAshing your limits?
Taking time to reflect can help you recognize progress, celebrate wins, and reframe challenges. This guided set of prompts is designed to support self‑reflection, creativity, and goal‑setting, helping you connect with your experiences and think about how you’re SMAshing your limits.
Growing up, growing independent
As priorities and responsibilities change, independence can look different for everyone. This guide explores ways to build self‑advocacy, balance support, and develop confidence over time – offering guidance on navigating conversations with parents or caregivers and growing at your own pace.